Disparities and Vulnerable Populations
INTERVIEWS
Respecting the Disabled at End of Life
Paul Tobin, president & CEO of the United Spinal Association, discusses end of life concerns of people with disabilities, ranging from access to services and supports to maximize independence to perspectives on assisted suicide.
22-Oct-10, Paul Tobin, President & CEO, United Spinal Association
CULTURAL DIVERSITY ARTICLES
Bioethics Forum
Cultural Diversity, Ethics & Health Care, Vol. 11(2) Summer 1995
Bioethical Issues Confronting the African American Community
Kelvin T. Calloway
Case Study: Empacho - Curing a Latino "Folk Illness"
Rosemary Flanigan
Modern Medicine in a Multicultural Setting
Dorothy Rasinski Gregory
Cultural Diversity in Medicine and Medical Ethics: What are the Key Questions?
Johon La Puma
In a Different Voice: Technology, Culture and Post-Modern Bioethics
Douglas McNair
Lee M. Pachter
Where Is Will Roger When We Need Him Most? Toward a Traditional Morality in Biomedical Ethics
Tex Sample
Cultural Diversity, Vol. 17 (1), Spring 2001
Fadiman and Beyond: The Dangers of Extrapolation
Linda L. Barnes and Gary A. Plotnikoff
Case Study: What Amy Doesn't Know - Respect for Cultural Diversity or Bad Ethics?
Helen Emmott, Robert Lyman Potter and Rosemary Flanigan
Cultural Barriers to Compassionate Care - Patients' and Health Professionals' Perspectives
Alice H. Cornelison
Outcomes of Written Living Wills in Japan - A Survey of he Deceased Ones' Families
YuichiroMasuda, Michael D. Fetters, Hiroshi Shimokata, Emiko Muto, Nanaka Mogi, Akihisa Iguchi and Kazumasa Uemura
Addressing Cultural Incongruities of Advance Directives
Dula Pacquiao
Reader's Forum: Riddle Me This: The Interplay Between the Social and Biology Constructs of Race
Cultural Assessment in Bioethical Advocacy - Toward Cultural Competency in Bioethical Practice
Ramon Valle
Cultural Diversity: Trusting Our Differences, Vol. 17 (3/4), 2001
Viewpoint: Their Story, My Story, Our Story
Vicky Burnett
Learning from Different Cultures - A Cultural Diversity Project in End-of-Life Care
Myra Christopher and Helen Emmott
Putting a Face on Poverty - A Tale of Two Counties
Sharon Lee
Ethics and Cultural Diversity - A Framework for Decision-Making
Dula F. Pacquiao
Vulnerability and Strength - Giving Voice to the Voiceless
Dennis Saleebey
Notes from the Field - An Adventure in Multiculturalism
M.C. Sullivan
Healthcare Narratives from Diverse Communities - A Self-Assessment Tool for Healthcare Providers
Midwest Bioethics Center Staff and Members of the Cultural Diversity Taskforce
The Cultural Divide between Medical Providers and Their Patients - Aligning Two World Views
Sara E. Tirrell
VULNERABLE POPULATION AND DISPARITIES ARTICLES
Midwest Medical Ethics
Vol. 6 (2 & 3), Spring/Summer 1990 -
Ethics and People with Developmental Disabilities
How Can Daniel Find a Girlfriend?
Linda L. Cooper
Daryl P. Evans
Julie Heide
Simple Lives, Rich Gifts, Caring Communities
David O. Jenkins
Mary Johnson
Paul H. Levy
Carter Martin
Ethical and Legal Issues in the Medical Care of Retarded Persons
Philip R. Reilly
Coming of Age in the 1990s: People with Down Syndrome
Donna M. Rosenthal
The Right to Die or the Right to Community Support?
Maggie Shreve and June Isaacson Kailes
Irene R. Walsh
Bioethics Forum
Vulnerable Populations, Vol. 15 (2), Summer 1999
Addressing the Health Needs of the Underserved
Ellen Beck
Case Study: What Should We Do?
Rosemary Flanigan
Viewpoint: Societal Effects of Overlooking Children - Our Most Vulnerable Population
Linda Johnson
Treating Immigrant Populations - Cultural Competence in Health Care
Alice Kitchen
Robert D. Orr
Viewpoint: Prisoners as Vulnerable Persons
Robert Lyman Potter
Project BRIDGE - People with Disabilities Participate in Their Health Care Decisions
Don F. Reynolds
Autonomy and Competency - Self-Determination in the Lives of Adults with Developmental Disabilities
Tanya Whitehead
Reflections on Vulnerability and the Bioethics Movement, Vol. 16 (2), 2000
Case Study: Patient Vulnerability from a Systems Failure to Protect
Linda Johnson and Robert L. Potter
Listening to Stories - A Poet Speaks to Physicians
Stephen Dunn
Vulnerabiity and the Bioethics Movement
Rosemary Flanigan
Suffering, Cure and Palliation - Bioethics in an Era of Diverse Idioms
Douglas McNair
David C. Thomasma
Center for Practical Bioethics
Disparities in Health and Healthcare , Vol. 1 (4), Vol. 2 (1) Fall/Winter 2005/06
Disparities in Population Health - An Overview of Empirical and Ethical Issues
Erika Blacksher
Tarris Rosell
Stacey Daniels-Young
Steve Roling
Idealism, Impotence and Justice
Jack Coulehan
Case Study: It's Too Much - First My Daughter, and Now This
Sharon Lee and Rosemary Flanigan
State Initiatives in End-of-Life Care
Policies to Address Disparities in End-of-Life Care, Issue 24
Approaches for Patients from Marginalized Groups, Issue 12
BIOETHICS CHANNEL
Conflicting View about the Review Process for Ashley X
In 2007, a developmentally disabled 7-year old girl underwent procedures in a Seattle hospital to stop normal growth. The Ashley X case created headlines and raised a host of ethical questions. Those issues are revisited in the January 2010 issue of The American Journal of Bioethics. Here, two bioethicists, one who supported the process of review followed by the ethics committee and the other who did not, discuss why such procedures should or should not require a court order. The bioethicists are Dr. Norman Fost, Professor of Pediatrics and Bioethics, University of Wisconsin-Madison, and Dr. John Lantos, Director of Children's Mercy Hospital Bioethics Center in Kansas City, and past John B. Francis Chair at the Center. (January 22, 2010, Norman Fost)
Cultural Fault Lines in Healthcare
Cultural fault lines exist in healthcare with clashing moral traditions, principles, values and beliefs, according to Michael Brannigan, PhD, the Pfaff Endowed Chair in Ethics and Moral Values at the College of St. Rose in Albany, New York. Dr. Brannigan examines how healthcare institutions have responded to these cultural fault lines. His most recent book is entitle "Cultural Fault Lines in Healthcare: Reflections on Cultural Competency." May 3, 2012
Pros and Cons of using Organs Donated by Living or Executed Prisoners
Arthur Caplan, PhD, Director of the Center for Bioethics at the University of Pennsylvania, discusses an October 2011 article in the American Journal of Bioethics, which considers the pros and cons of using organs donated by living or executed prisoners. (October 11, 2011)
Implementations of New HIV Testing
An article in the April 2011 issue of the American Journal of Bioethics addresses ethical concerns over new recommendations for HIV testing, which appear to focus on implementation rather than the recommendations themselves, as discussed here with article co-author Teresa Celada of Wheaton College. (April 15, 2011)
When Public Health Officials Collaborated in Crimes Against Humanity
Susan Bachrach, Curator US Holocaust Memorial Museum, and Jean Zeldin, Executive Director, Midwest Center for Holocaust Education, discuss the long path to genocide, including ideas about eugenics, which created an environment in which physicians and public health officials collaborated in crimes against humanity.
Transforming Bioethics: Sensitivity to Cultural Differences
Standard bioethics is ripe for transformation. Richard Payne, MD, John B. Francis Chair at the Center and Esther Colliflower Professor of Medicine and Divinity at Duke Dvinity School, Duke University, provides a preview of his Flanigan Lecture, where he argues that cardinal principles of ethics (autonomy, non-malfeasance, benificense and justice) may over-emphasize autonomy to the detriment of underserved people from different cultural perspectives. (July 14, 2011)
Spirituality and Race in End of Life Care
What does spirituality and race have to do with end of life care? Terry Rosell, Rosemary Flanigan Chair, and Richard Payne, MD, professor at Duke University and John B. Francis Chair at the Center, discuss disparities in healthcare in African American populations and how they impact care at the end of life prior to presenting a program on the same subject to African American faith leaders in Topeka on July 27, 2011.
Respecting the Disabled at the End of Life
Where do we stand when it comes to people with disabilities and end of life issues? Paul Tobin, president and CEO of the United Spinal Association, will address this question in Kansas City at the Legacy of Nancy Cruzan Conference November 12 and 13, 2010. (October 20, 2010)
The Bioethics of Gay Men Donating Blood
Matching Physicians with Patients in Need
In 2005, it was an idea. Two years later, it became a reality. Now It’s the Northland Care/MetroCARE program, a specialty care network for the poor and uninsured in the Kansas City area. Jill Watson of the Metropolitan Medical Society and Dr.Tyler Brundige talk about the program. (April 24, 2009)
Rosemary Flanigan Lecture Presents "The Ethics of Spectacle" with Karla Holloway
In this short interview, Duke University Professor Karla Holloway, PhD, explored how medical information - typically seen as intimate and private - is forced into the public sphere. The resulting social dramas become spectacles that play out on the bodies of minorities and women. Dr. Holloway called for a "cultural bioethics" that attends to race, gender, the right to privacy and justice. The lecture was on August 13, 2014, Disparities & Vulnerable Populations, Karla Holloway, PHd.
Healthcare and Social Justice from the Heartland to Haiti
Helen Emmott, a nurse ethicist, explains why healthcare and social justice challenges exist not just in Haiti but in the heartland of America as well. (January 14, 2011)
The Ethics of Care for Undocumented Immigrants
Disparities & Vulnerable Populations
Lee Woodruff: ReMind Us about Returning Vets
Lee and Bob Woodruff are recipients of the 2012 Vision to Action Award, the highest honor conferred by the Center for Practical Bioethics. Ms. Woodruff accepted the award during the Center’s Annual Dinner on April 19, 2012. In her acceptance remarks, she talks about their work with ReMind, an organization that tends to the needs of injured military veterans returning to the US from conflicts all over the world. (April 23, 2012)
Chronic Pain and Health Disparities
September Williams, MD, discusses chronic pain, health disparities and why we need to do something abou it. Dr. Williams is an internal medicine physician at the San Francisco Public Health Department’s Laguna Honda Hospital and Rehabilitation Center. She is also a clinical ethicist and a film maker. (March 9, 2011, September Williams, MD)
LECTURES
Bioethics and the Underserved: Culture, Values and Justice
There is much in contemporary health care that is ripe for transformation, including bioethics. Standard bioethics codified in the ethical principles of "autonomy, beneficence, non-malfeasance, and justice" needs to be challenged as too limiting a framework for analyzing and responding to ethical and moral issues raised by the problems of inadequate health care for many.
Standard bioethics codified in the ethical principles of "autonomy, beneficence, non-malfeasance, and justice" needs to be challenged as too limiting a framework for analyzing and responding to ethical and moral issues raised by the problems of inadequate health care for many.In this lecture, Dr. Richard Payne, M.D., discusses how medical professionals might consider a wider perspective of bioethics that encompasses cultural narratives and perspectives that should enhance richer and more robust dimensions of ethical decision making.
In this July 26, 2011, lecture, Dr. Richard Payne, M.D., discusses how medical professionals might consider a wider perspective of bioethics that encompasses cultural narratives and perspectives that should enhance richer and more robust dimensions of ethical decision making.
