Dinner and Symposium



Kathleen Sebelius

Matters of Life and Death

April 5, 2017
Reception 5:30 pm, Dinner 6:45 pm
Kansas City Marriott Downtown - Muehlebach Tower
Kathleen Sebelius
Sebelius served as Secretary of the U.S. Department of Health and Human Services from 2009 to 2014 and the Governor of Kansas from 2003 to 2009. Her keynote, Big Ideas in End-of-Life Care, will address such questions as how do we honor the oft-stated desire to “die with dignity?” Help people have effective conversations on this topic? Honor their wishes and meet their needs? And, what is the role of public policy in improving end-of-life care?
Nathan Kottkamp, JD
Ten years ago, Kottkamp founded and continues to serve as chair of National Healthcare Decisions Day. The goal of NHDD, an initiative in 50-states, is to inspire, educate and empower the public and providers about the importance of advance care planning. This year, NHDD will be a week-long event from April 16 - 22.|
Kathy Greenlee
Join Kathy Greenlee, the Center’s new Vice President of Aging and Health Policy, in exploring how to balance the unique needs of all people, regardless of age and ability, through supported decision making and person-centered planning. Experts will discuss strategies for increasing support and the best ways to involve loved ones and providers.

Bollier Family

Barbara and Rene Bollier
Barbara, who retired from medical practice in 1999, represents District 7 in the Kansas State Senate. Rene is a family medicine physician affiliated with multiple hospitals in the Kansas City area. Both graduated from the University of Kansas School of Medicine. Barbara received the Center’s Vision to Acton Award in 2010.
Warm FamilyDavid and Julie Warm
David has been the Executive Director of the Mid-America Regional Council since July 1990. Julie’s current work at the University of Missouri- Kansas City focuses on women’s leadership, student civic engagement and the inclusion of students with intellectual disabilities.



April 6, 2017
8:30 am to 3:30 pm
Kansas City University of Medicine and Biosciences
Join us for this year’s Joan Berkley Symposium where we will explore how to balance the unique needs of all people, regardless of age and ability. Kathy Greenlee, the Center’s new Vice-President for Aging and Health Policy, will be joined by other experts in discussing supported decision-making, a strategy for providing gradual and increasing support as a person needs more help, as well as person-centered planning and the best ways to ensure that loved ones and healthcare providers are working together on behalf of someone who is seriously ill.
Kathy Greenlee
Kathy Greenlee, JD, former Assistant Secretary for Aging in the U.S. Department of Health and Human Services, joined the Center staff as Vice President for Aging and Health Policy last fall. Her work expands our three-decade commitment to helping Americans manage the challenges of aging, serious illness and decision making at the end of life:
• Advocating for advance care planning
• Engaging with community-based aging and disability organizations
• Improving transitions of care between healthcare providers and
community-based organizations
• Supporting regional work on elder abuse and response
Now in its 10th year, the Joan Berkley Bioethics Symposium recognizes the devotion of a beloved board member of the Center and honors her insatiable curiosity and interest in bioethics.
8:30 - Welcome
John G. Carney, President and CEO, Center for Practical Bioethics
Janet Berkley Dubrava, Daughter of Joan Berkley
8:45 - Introduction
Kathy Greenlee, Vice President for Aging and Health Policy, Center for Practical Bioethics
9:00 - Disability, Aging & Health
A panel of consumers will provide first-hand information about their experience with
healthcare providers.
9:45 - Staying in Charge through Supported Decision Making
Tina Campanella, CEO, Quality Trust for People with Disabilities
10:30 - Break
10:45 - Person-Centered Planning: What’s Important TO and FOR People with Advanced Illness
Robert Sattler,  Partner, Support Development Associates
11:30 - Tools for Charting the Life Course Framework
Michelle Reynolds, Director, Individual Advocacy and Family Support, Institute for Human Development, University of Missouri-Kansas City
12:30 - Lunch
1:15 - The Ethics of Being Person-Centered   
Kathy Greenlee, Vice President for Aging and Health Policy, Center for Practical Bioethics
Richard Payne, John B. Francis Chair, Center for Practical Bioethics
Don Reynolds, Assistant Research Professor and Director of the Office for Responsible Research, University of Missouri Center for Health Ethics
2:00 - Giving Rise to Authentic Voices
We will explore patient and caregiver goals and values when dealing with serious illness by hearing directly from people for whom this is
currently important.
3:00 - Patients as People
Lex Frieden, Professor of Biomedical Informatics and Professor of Rehabilitation, University of Texas Health Science Center (via remote)